Back-to-School Tips for Parents Caring for Children with Bleeding Disorders

Back-to-School Tips for Parents Caring for Children with Bleeding Disorders

4 things to cover before school starts.

As a parent of a child with a bleeding disorder, getting ready for school means more than picking out school supplies. But with a little homework on your part, you can get your child ready for school—and get the school ready for your child. The good news is that your child's school experience can be every bit as great as that of his or her classmates.

Before school starts, just set up a meeting with a few of the key staff, like your child's teacher, the school nurse, the guidance counselor, gym teacher, and someone from administration to make sure they know that a child with a bleeding disorder is under their supervision.1

In this meeting, you'll cover these "Ready 4 School!" topics2:

1. Bleeding disorder basics

This is a basic overview of your child's disorder. Your local bleeding disorders organization and hemophilia treatment center (HTC) can help you put together information to help the school understand bleeding disorders. You can help make sure the staff is ready to take action if necessary.

There's a lot to learn. Do you have all the information you need? Read more in hemophilia questions & answers.

2. How to recognize a bleed

Be sure to let staff know the difference between an external cut and an internal bleed.2 Your child may know when he is having an internal bleed and should tell someone immediately. Be sure to call out symptoms they can see, such as an arm that's limp or not being used.2

When you're prepared, your child is too. Read more at Recognizing and Treating Bleeds.

3. Your child's care plan

This includes the school's immediate treatment instructions, such as using R.I.C.E. (rest, ice, compression, elevation) for bleeds, and factor infusion to help stop the bleed. Your child's specific care plan should be created by your HTC before meeting with your child's school. Your child's healthcare team can also outline possible activities they should avoid or when to use safety tools like a helmet.

Put a solid plan in place. Read more about finding Hemophilia Treatment Centers.

4. Emergency contacts

Make sure the school has your contact information as well as a direct line to your HTC and your child's healthcare team.

Your goal here? It's to make sure your child's school experience is as normal and safe as possible. And unless your child's healthcare team says no, your child can participate in regular gym class, go on field trips, and play at recess with his classmates.2

Being safe means being ready. Read more about Choosing an ER.

NOTE:

Make sure you talk to your doctor about your child's participation in school sports, gym class, or recess activities so you can determine what is right for your child.

References

  1. McIntosh P. Back to School With A Bleeding Disorder. HemAware website. 2011. http://www.hemaware.org/story/back-school-bleeding-disorder. Accessed January 26, 2017.
  2. Hemophilia Federation of America. Hemophilia and {Insert Your Child's Name} at School. http://www.hemophiliafed.org/resource-library/toolkits/back-to-school-toolkit/. Accessed January 26, 2017.

Back-to-School Tips for Parents Caring for Children with Bleeding Disorders

Here are some tips for parents with students who have a bleeding disorder. Before school starts, cover some bleeding disorder basics with your child.