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Think you may have
von Willebrand disease?

While millions of people experience symptoms of von Willebrand disease (VWD), many remain undiagnosed.1,2 If you think you or your loved one may have VWD, read more below and discover what resources are available for you.

See Alex Borstein's story
What is VWD?

VWD, or von Willebrand disease, is the most common inherited bleeding disorder caused by a deficient or defective clotting protein called von Willebrand factor.2,3 Some people may never know they have VWD unless they experience a serious accident or undergo surgery. While VWD affects men and women equally, women have more symptoms due to heavy bleeding during menstrual periods.1

What are the symptoms?

People with VWD experience symptoms such as excessive bleeding from a small wound, prolonged bleeding after a surgery or dental procedure, easy bruising from small bumps or injuries, frequent nosebleeds, and heavy menstrual bleeding in women.1

What should you do if you think you have VWD?

Review your medical and family history with your healthcare provider. He or she may order a variety of blood tests to confirm a diagnosis or refer you to a bleeding disorder specialist. The good news is, there are treatment options available if you are diagnosed with VWD.2 Find resources from the National Hemophilia Foundation (NHF) and Takeda in the links below.

Alex's personal connection to bleeding disorders

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Alex Borstein

Actor, author, public speaker

Alex Borstein is an award-winning actress, comedian, writer, and producer. Her most recent Emmy Award was for her supporting role as a wise-cracking manager in “The Marvelous Mrs. Maisel.” Bleeding disorders run in Alex's family; her brother and her daughter are affected. This family connection led her to becoming an ardent spokesperson for NHF, with a passion for building awareness about bleeding disorders and the need for people to advocate for themselves and to get tested.

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education

Take an active role

Use this guidebook to learn more about VWD including common symptoms, diagnosis, and disease management; practical tips on caring for someone with VWD; and other resources for adults with VWD.

Download the VWD guide
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support

Ready to take the next step?

NHF and Takeda have partnered to raise awareness and education around VWD. Together, we provide resources, support, and information to help increase your knowledge about VWD. Continue to learn more about VWD by talking to your healthcare provider and visiting our websites.

Betteryouknow.org
Bleedingdisorders.com
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Take the next step - visit betteryouknow.org and bleedingdisorders.com.

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  1. A guide for people living with von Willebrand disorder. Haemophilia Foundation Australia. http://haemophilia.org.au/HFA/media/Documents/von%20willebrand%20disorder/A-guide-for-people-living-with-von-willebrand-disorder.pdf. Published June 2010. Accessed October 10, 2019.
  2. What is von Willebrand disease? Centers for Disease Control and Prevention website. https://www.cdc.gov/ncbddd/vwd/facts.html. Published June 7, 2007. Accessed August 26, 2019.
  3. Bolton-Maggs PHB, Lillicrap L, Goudemand J, Berntorp E. Von Willebrand disease update: diagnostic and treatment dilemmas. Haemophilia. 2008;14(Suppl. 3):56-61.