Disease Management
Disease Management

Managing a bleeding disorder

Successfully managing life with a bleeding disorder takes a combination of preparedness, preventive care, and timely treatment. In this section, learn how to prepare for an emergency, the importance of good dental care, the benefits of physical therapy, and current treatment options for different bleeding disorders.

Treatment overview for bleeding disorders

Factor replacement therapy is the most common treatment for hemophilia, with decades of real-world use and proven efficacy and established safety record.1,2 Factor therapy replaces the missing blood-clotting proteins that are found naturally in your blood. Since it is administered via an intravenous injection, the proteins are available immediately for use.3 It can be used on-demand, prophylactically, or during surgery.3 Non-factor treatments are also available for some bleeding disorders in certain situations.3 As far as future treatment options, several gene therapies are being studied as potential cures for certain types of hemophilia.4

“It’s not like it was back in 1965 when my brother was born. My brother was walking with a cane at nine. My son is nine and he runs, he rides a bike.“ — Athena, parent

Treatment options for bleeding disorders

Below are all available treatments for hemophilia, von Willebrand disease, and inhibitors to factor therapy.

Compare treatment options for bleeding disorders. Compare treatment options for bleeding disorders.

Last updated November 2019

Individualized treatment for bleeding disorders

Since each person responds to treatment differently for a variety of reasons, an analysis of specific symptoms—such as bleeding rates and level of factor in the blood—can help healthcare providers find the right treatment and regimen for a particular person with a bleeding disorder.9

Watch 3 moms talk about the importance of treatment and the hope it gives them

Watch 3 moms talk about the importance of treatment and the hope it gives them

  1. Treatment World Federation of Hemophilia website. https://www.wfh.org/en/page.aspx?pid=642. Updated March 2016. Accessed August 21, 2019.
  2. History of bleeding disorders. National Hemophilia Foundation website. https://www.hemophilia.org/Bleeding-Disorders/History-of-Bleeding-Disorders. Accessed August 21, 2019.
  3. Treatment of hemophilia. Centers for Disease Control and Prevention website. https://www.cdc.gov/ncbddd/hemophilia/treatment.html. Reviewed March 11, 2019. Accessed August 20, 2019.
  4. Nienhuis AW, Nathwani AC, Davidoff AM. Gene Therapy for Hemophilia. Mol Ther. 2017;25(5):1163–1167. doi:10.1016/j.ymthe.2017.03.033
  5. Taking factor. The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook website. https://www.hog.org/handbook/article/3/29/taking-factor. Accessed August 20, 2019.
  6. Hemophilia. National Heart, Lung, and Blood Institute website. https://www.nhlbi.nih.gov/health-topics/hemophilia. Accessed August 20, 2019.
  7. National Hemophilia Foundation. MASAC recommendations concerning products licensed for the treatment of hemophilia and other bleeding disorders. https://www.hemophilia.org/sites/default/files/document/files/masac253.pdf. Revised April 2018. Accessed August 20, 2019.
  8. National Hemophilia Foundation. Products licensed in the U.S. to treat hemophilia. https://www.hemophilia.org/sites/default/files/document/files/253Tables.pdf. Accessed August 20, 2019.
  9. Hazendonk HCAM, van Moort I, Mathot RAA, et al; OPTI-CLOT study group. Setting the stage for individualized therapy in hemophilia: What role can pharmacokinetics play? Blood Rev. 2018;32(4):265-271.

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