Living on your own with a bleeding disorder

It's time. And you're ready. With these 4 simple tips, you're taking the first steps in adjusting to adulthood and living with a bleeding disorder.

A person at home and blood drop icon.

Owning adulthood means owning your bleeding disorder

It may seem easier to let the adults who have always managed your healthcare continue to do so. But it's really important that you learn how to take charge of your own health and health care.1

  • At this stage, it’s important to become independent and learn how to manage personal health issues.1

  • When you move out, it’s good to note the location of the closest:

    • Hemophilia treatment center
    • Emergency room
    • Campus health clinic
  • If you have trouble sticking to a prophylactic therapy routine, a doctor can make adjustments.

  • Improperly stored or expired products can be less effective in preventing and treating bleeding episodes. So it’s important that you store them correctly and dispose of any medical waste properly—preferably in a single-use sharps container.2

If your kids are educated on their blood disorder, then you've done your job. Now let them navigate life with what they know, and be there to guide them when they need you.

-Becky, parent

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  1. National Hemophilia Foundation. Steps for living: gaining independence. https‌:‌/‌/‌stepsforliving‌.‌hemophilia‌.‌org/‌step-‌up‌/gaining-‌independence. Accessed February 15, 2023.
  2. Frase M. Safely storing factor at home: what you need to know to begin home therapy. HemAware. https‌:‌/‌/‌hemaware‌.‌org‌/‌bleeding-‌disorders-z‌/‌safely-‌storing-‌factor-home. Accessed February 15, 2023.