For people or loved ones with a bleeding disorder, trips to the emergency room may be necessary. Advance preparation can make a trip to the ER as smooth as possible.1
One of the first things you can do is obtain and wear a medical ID bracelet and carry a wallet card. These 2 things could save your life in the event that you are hurt and unable to speak.1
In addition, people with a bleeding disorder and their caregivers can:
Advance preparation of your family and your ER can make visits less stressful on everyone.
Selecting an ER is another important way to prepare. Here are some tips that can help1:
“I always say to emergency room staff, listen to the patient, because they often know more about their disease state than the people treating them.“ — Lisa, Takeda clinical specialist
To prepare for an emergency such as a natural disaster (eg, hurricane) where your treatment supply may be limited for a short period of time, the Medical and Scientific Advisory Council (MASAC) recommends that patients with severe and moderately severe bleeding disorders keep 7 extra doses of factor treatment at home.4 It is also a good idea to keep the phone number of the local National Hemophilia Foundation (NHF) chapter handy so you can contact them for additional services and information.
With all of this preparation for bleeding disorder emergencies complete, you and your family can feel calm and confident when the need for an ER visit does arise.
How you respond to bleeds can contribute to the level of pain you experience in your joints.
Hemophilia Treatment Centers (HTCs) provide a range of education and support services.
Be prepared with questions so you can have better conversations with your healthcare provider.