The most common treatment for hemophilia B is called replacement therapy.1 Concentrates of clotting factor IX are the foundation of this treatment for hemophilia B and are administered as an infusion to help replace the clotting factor that's missing or low in the blood.1
You can do both prophylactic (ongoing) and on-demand (as-needed) replacement therapy at home. Many people learn to do the infusions at home for their child or for themselves. Home treatment has several advantages1:
Today, clotting factor IX concentrates can be made without human plasma.1 These types of infusions are called recombinant clotting factors.1
When you have a bleeding disorder, certain proteins in the blood, called clotting factors, may not be functioning right or there may not be enough of them for you to clot normally. An infused treatment temporarily adds fully functional factor to help your blood clot.1
In the past 25+ years, significant advances have been made in the manufacturing of these recombinant clotting factors.3 Recombinant technology has helped produce factor concentrates that avoid the risk of human-viral contamination.3
The Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation (NHF) encourages the use of recombinant clotting factor products.4 Your HCP or your Hemophilia Treatment Center (HTC) will help you decide which is right for you.
You can help your HCP tailor your treatment to your specific needs by keeping track of your bleeds, physical activity, and infusions.5
“Factor treatment has to be personalized to your lifestyle.“ — Ryan, adult living with hemophilia
Be prepared with questions so you can have better conversations with your healthcare provider.
You're not alone. More than 30% of hemophilia patients face inhibitors to their treatment.
Hemophilia Treatment Centers (HTCs) provide a range of education and support services.