Financial Resources
Financial Resources

Focusing on your finances

Living with a bleeding disorder such as hemophilia or von Willebrand disease often means living with high-cost medical expenses too.1 That makes it important to budget, plan ahead, and take extra care with money-related decisions.

Look closely: find the right healthcare coverage—with your bleeding disorder in mind

Choosing a healthcare plan can be difficult and confusing, but here are some steps you can take to feel confident that your decision makes sense financially.2 You can also download the Personal Health Insurance Toolkit from the National Hemophilia Foundation (NHF) to guide you through the process.

1

Make a list2

In the last 12 months, how many times have you or your family members used these health-related services?

Use the Personal Health Experience Stat Sheet in the NHF Toolkit to jot down these details.

  • Visited a primary care physician
  • Seen a specialist
  • Gone to the ER
  • Purchased prescriptions
2

Get organized2-4

For each plan you're considering, gather these documents.

Find a glossary of healthcare terms and acronyms in the NHF Toolkit.

  • Summary of Benefits and Coverage (SBC)
  • Drug Formulary
  • Provider Network Booklet
  • Health Savings Account (HSA) or Flexible Savings Account (FSA) information (if you have either)
3

Compare costs and benefits2

Answer these important questions for each plan you’re thinking about.

The Health Plan Cost Comparison Worksheet in the NHF Toolkit helps simplify this task.

  • What is the monthly/
    annual premium?
  • What is the out-of-pocket maximum?
  • Are all the important services you need covered?
  • Do you need a referral for a specialist?
  • What are the costs for going out of network?
  • Does the plan have a co-pay accumulator provision?
4

Examine coverage for bleeding disorders2

The answers to these critical questions may have a major impact on your health insurance decision.

  • Are your medications, including clotting factor, covered?
    -If so, what is the coinsurance percentage or co-pay amount?
  • Are the providers you want to see in-network?
    -Include your primary care physician, specialists, Hemophilia Treatment Center, hospital, and specialty pharmacy

Get started with the NHF Personal Health Insurance Toolkit

Clipart representing NHF personal health insurance toolkit.

Download this comprehensive and easy-to-use resource to help guide you through the process of choosing a health insurance plan. Get yours now

Be money wise: Think beyond health insurance, especially when living with a bleeding disorder

Below are some additional things to consider when managing your bleeding disorder and your money.

Need more resources? The hemophilia community is here to help!

Hemophilia Federation of America logo.

The Hemophilia Federation of America dedicates a section of its website to navigating health insurance—including information on government regulations. Go there now

  1. Bleeding disorders aren't cheap. Hemophilia Federation of America website. Accessed July 21, 2021. https://www.hemophiliafed.org/home/understanding-bleeding-disorders/challenges/financial-considerations/
  2. Personal Health Insurance Toolkit. National Hemophilia Foundation website. Accessed July 21, 2021. https://www.hemophilia.org/sites/default/files/document/files/insurance_toolkit_2019.pdf
  3. Using a Flexible Spending Account (FSA). Healthcare.gov website. Accessed July 21, 2021. https://www.healthcare.gov/have-job-based-coverage/flexible-spending-accounts/
  4. How HSAs work with HDHPs. Healthcare.gov website. Accessed July 21, 2021. https://www.healthcare.gov/high-deductible-health-plan/hdhp-hsa-work-together/
  5. Dental Care. Steps for Living website. Accessed July 21, 2021. https://stepsforliving.hemophilia.org/first-step/maintaining-a-healthy-body/dental-care
  6. Scully C, Diz Dios P, Giangrande P. World Federation of Hemophilia. Oral care for people with hemophilia or a hereditary bleeding tendency. Published 2002. Revised 2008. Accessed July 21, 2021. http://www1.wfh.org/publications/files/pdf-1164.pdf
  7. A Quick Guide to Your Emergency Fund. Ramsey website. Accessed July 21, 2021. https://www.ramseysolutions.com/saving/quick-guide-to-your-emergency-fund
  8. Your Career Search. Steps for Living website. Accessed July 21, 2021. https://stepsforliving.hemophilia.org/step-up/planning-for-the-future/your-career-search
  9. Workplace Issues. Steps for Living website. Accessed July 21, 2021. https://stepsforliving.hemophilia.org/step-out/workplace-issues
  10. Ways to Save on Rx Meds? National Consumers League website. Accessed July 21, 2021. https://nclnet.org/co-pay_cards/