Treatment Centers
Treatment Centers

Specialized care from Hemophilia Treatment Centers

Hemophilia Treatment Centers (HTCs) help bleeding disorder patients and families manage life with a bleeding disorder, including hemophilia and von Willebrand disease (VWD). They provide comprehensive care including medical care, education, and support services.1

HTCs are part of a system of care with locations throughout the United States and the world.1,2 They are staffed by a care team of professionals with experience in bleeding disorders that includes hematologists, nurses, social workers, physical therapists, and more.1

Although services may vary by treatment center, the following are some of the services typically offered through an HTC1,3,4:

  • Medical treatment
  • Physical therapy
  • Disease education
  • Psychological and emotional counseling
  • Advocacy with insurance companies
  • Research studies and clinical trials
  • Support groups
  • Education on bleeding disorders for school teachers and day care staff
  • Home infusion instruction and support for parents and children
  • Genetic counseling
  • Women’s health coordination
  • Safety network for traveling families
  • Summer camps for children with bleeding disorders

The benefits of a comprehensive care plan

In comprehensive care, a patient is first assigned a team, which varies based on the individual’s needs and the structure of that particular HTC.3 Your team of healthcare providers (HCPs) typically includes hematologists, nurses, social workers, physical therapists, psychologists, and, for female patients, a gynecologist. Some may also have dentists, genetic counselors, and orthopedists.3,4

It’s very important that patients being treated for a bleeding disorder are involved in every aspect of their care. The team takes into account each individual’s needs and lifestyle when planning their treatment.3

“Hold on, don’t take no for an answer, and find doctors who will help you find the treatment that’s best for you.“ — Cathy, hemophilia A patient

Where can I find an HTC?

Looking for an HCP to help you manage your bleeding disorder? An HTC is staffed with health professionals familiar with treating bleeding disorders.3

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  1. Clay R. Hemophilia treatment centers 101. HemAware website. https://hemaware.org/bleeding-disorders-z/hemophilia-treatment-centers-101. Published October 14, 2010. Accessed August 22, 2019.
  2. Find a resource. World Federation of Hemophilia website. https://www.wfh.org/en/page.aspx?pid=1264. Accessed September 4, 2019.
  3. Hemophilia Treatment Centers (HTCs). Steps for Living website. https://stepsforliving.hemophilia.org/basics-of-bleeding-disorders/hemophilia-treatment-centers. Accessed August 22, 2019.
  4. Srivastava A, Brewer AK, Mauser-Bunschoten EP, et al; Treatment Guidelines Working Group on Behalf of The World Federation of Hemophilia. Guidelines for the management of hemophilia. Haemophila. 2013;19(1):e1-47. http://www1.wfh.org/publications/files/pdf-1472.pdf. Published January 2013. Accessed August 26, 2019.

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